New REG Publication

The Interstitial Lung Disease Patient Pathway: From Referral to Diagnosis

We are delighted to share our latest publication, “The Interstitial Lung Disease Patient Pathway: From Referral to Diagnosis”, now available in ERJ Open Research. This study was led by REG researcher Dr. Graham Lough, alongside Principal Investigator Dr. Pilar Rivera Ortega.

The research aimed to explore and compare the ILD patient pathways across specialist and non-specialist centres, as well as between different regions. The study focussed on key areas such as referrals, caseloads, diagnostic tools, multi-disciplinary team (MDT) meeting practices, and resource availability.

The study was based on a comprehensive global survey, receiving 363 responses from ILD specialists and healthcare professionals across 64 countries. The findings highlighted significant differences in diagnostic pathways, with disparities in access to resources (such as antifibrotic therapies, clinical trials and specialist expertise) across centres and countries of varying income levels.

We extend our deepest gratitude to all collaborators and contributors who made this study possible.