Category: Our News

NEW REG Webinar Series

NEW REG Webinars Series

Introducing REG WEBINARS

REG is pleased to announce a new webinar series.
The topic for this inaugural webinar is

A Primary Care Approach to the Management of Difficult Asthma

The webinar will be by Dr. Dermot Ryan and introduced by Prof. Joan B. Soriano

You are invited to join this webinar on Wednesday 2nd April from 5 to 6PM CET

Join the webinar via this Teams link:
https://teams.microsoft.com:443/l/meetup-join/19%3ameeting_ZWVjMTllMDItMWYxZS00NDIwLThlODItOTdjMWRhM2JkYmMy%40thread.v2/0?context=%7b%22Tid%22%3a%22f7f34ccd-78c8-423c-ad3d-8a0a51a21107%22%2c%22Oid%22%3a%2272ae760b-d7f6-42c5-a748-c3564ade86e3%22%7d&pp=y6Ic1DrCW1cn

 

 

New REG Publication

New REG Publication - The Interstitial Lung Disease Patient Pathway: From Referral to Diagnosis

The Interstitial Lung Disease Patient Pathway: From Referral to Diagnosis

We are delighted to share our latest publication, “The Interstitial Lung Disease Patient Pathway: From Referral to Diagnosis”, now available in ERJ Open Research. This study was led by REG researcher Dr. Graham Lough, alongside Principal Investigator Dr. Pilar Rivera Ortega.

The research aimed to explore and compare the ILD patient pathways across specialist and non-specialist centres, as well as between different regions. The study focussed on key areas such as referrals, caseloads, diagnostic tools, multi-disciplinary team (MDT) meeting practices, and resource availability.

The study was based on a comprehensive global survey, receiving 363 responses from ILD specialists and healthcare professionals across 64 countries. The findings highlighted significant differences in diagnostic pathways, with disparities in access to resources (such as antifibrotic therapies, clinical trials and specialist expertise) across centres and countries of varying income levels.

We extend our deepest gratitude to all collaborators and contributors who made this study possible.

 

 

 

 

 

 

 

 

 

 

 

 

New REG Publication

New REG Publication - Patient and provider perspectives driving inhaler choice: optimizing sustainable healthcare

Patient and provider perspectives driving inhaler choice: optimizing sustainable healthcare

We are excited to share our latest research on the priorities driving inhaler choice among healthcare professionals (HCPs) and asthma / COPD patients. Amidst growing concerns over the environmental impact of inhaler propellants, the study aimed to identify priorities when selecting inhalers for medical, non-medical, and environmental reasons. The study, involving participants from 42 countries, provides valuable insights into the balance between clinical efficacy and environmental impact in inhaler selection.

Highlights of the Study:

  • Efficacy and Safety: HCPs and patients both prioritise clinical efficacy and safety when choosing inhalers, with environmental impact being a lower priority.
  • Environmental Concerns: Both HCPs and patients were concerned about climate change, but clinical efficacy remained the dominant factor in inhaler choice. Both groups felt the pharmaceutical industry should take responsibility for developing eco-friendly options.
  • Recycling Programs: Access to, and awareness of inhaler recycling programs is limited, indicating a need for better education and more robust recycling initiatives.

The findings highlight the necessity for informed decision-making in inhaler prescriptions, integrating both clinical needs and environmental sustainability.

Link to the full article:

https://journal.chestnet.org/article/S0012-3692(24)04577-X/fulltext

 

 

 

 

 

 

 

 

 

 

 

New REG Publication – Recommendations for asthma monitoring in children: A PeARL document endorsed by APAPARI, EAACI, INTERASMA, REG, and WAO

New REG Publication - Recommendations for asthma monitoring in children: A PeARL document endorsed by APAPARI, EAACI, INTERASMA, REG, and WAO

Recommendations for asthma monitoring in children: A PeARL document endorsed by APAPARI, EAACI, INTERASMA, REG, and WAO

Monitoring is a major component of asthma management in children. Regular monitoring allows for diagnosis confirmation, treatment optimisation, and natural history review. Numerous factors that may affect disease activity and patient well-being need to be monitored:

  • Response and adherence to treatment
  • Disease control
  • Disease progression
  • Comorbidities
  • Quality of life
  • Medication side-effects
  • Allergen and irritant exposures
  • Diet and more.

However, the prioritisation of such factors and the selection of relevant assessment tools is an unmet need. Furthermore, rapidly developing technologies promise new opportunities for closer, or even “real-time” monitoring between visits. Following an approach that included needs assessment, evidence appraisal, and Delphi consensus, the PeARL Think Tank, in collaboration with major international professional and patient organisations, has developed a set of 24 recommendations on pediatric asthma monitoring, to support healthcare professionals in decision-making and care pathway design.

Pediatric Asthma in Real Life (PeARL) is a think tank set up by the Respiratory Effectiveness Group consisting of health care professionals, clinical academics, and expert patient representatives with expertise in and professional exposure to paediatric asthma. Asthma monitoring was prioritized in a previous PeARL report evaluating unaddressed clinical needs in pediatric asthma

Link to the full article:

https://doi.org/10.1111/pai.14129

 

 

 

 

 

 

 

 

 

REG @ ERS, Milan 2023

REG @ ERS, Milan 2023

REG @ ERS,  Milan 2023

Congratulations to Graham Lough, REG Researcher, for presenting the poster on the REG project "Role of virtual multidisciplinary team meetings in the post-COVID era: a global survey to evaluate the ILD diagnostic pathway"