IPF / ILD Working Group

Members

  • Pilar Rivera Ortega – Lead
  • Luca Richeldi
  • Katerina Antoniou
  • Arata Azuma
  • Jürgen Behr
  • Demosthenes Bouros
  • Kevin Brown
  • Harold Collard
  • Tamera Corte
  • Ulrich Costabel
  • Ian Glaspole
  • Vincent Cottin
  • Bruno Crestani
  • Kevin Flaherty
  • Michael Keane
  • Gisli Jenkins
  • Martin Kolb
  • Toby Maher
  • Fernando J. Martinez
  • Mariano Mazzei
  • Ferran Morell
  • Maria Molina
  • Steven Nathan
  • Christopher Ryerson
  • Ganesh Raghu
  • Paola Rottoli
  • Moises Selman
  • Carlo Vancheri
  • Athol U. Wells
  • Thomas Geiser
  • Joan Soriano
  • Nazia Chaudhuri
  • Stefan Stanel
  • Laurence Pearmain
  • Leticia Kawano-Dourado
  • Brenda Varela
  • Gabriela Tabaj
  • Rayid Abdulqawi
  • Milind Baldi
  • Gina Amanda
  • Ahmed Bayoumy
  • Elisabeth Bendstrup
  • Michael Kreuter
  • Guadalupe Bermudo
  • Alexis Papadopoulos
  • George Margaritopoulos
  • Claudia Valenzuela
  • Janet Johnston
  • Elisabetta Renzoni
  • Lucilla Piccari
  • Cristina Matesanz
  • Asunción Nieto
  • Jeffrey Swigris
  • Roberto Carbone
  • Harshana Bandara
  • Bavi Vijayakumar
  • Andrew Li
  • Helen Jo
  • Abdullah Sakkat
  • Claudia Ravaglia
  • Jack Callum
  • Eirini Vasarmidi
  • Juan Enghelmayer
  • Deborah Assayag
  • Laura White

Work Plan

The IPF (Idiopathic Pulmonary Fibrosis) / ILD (Interstitial Lung Disease) Working Group’s work assesses the natural history, diagnostic and treatment approaches in IPF/ILD. With the introduction of licenced therapies for IPF there is a greater need for earlier and more accurate diagnosis of IPF. Therefore the group has undertaken a phase I project to understand diagnostic practice in ILD on a global scale. The project, which included 457 ILD treating centres from 64 countries showed that the gold standard multidisciplinary team approach to ILD diagnosis appears widely adopted in routine care, across all participating countries, income and care settings.


Minutes from recent REG ILD/IPF working group meetings

REG Summit, March 2023

ERS, September 2022

REG Summit, March 2022

ERS, September 2019

REG Summit, March 2019

ERS, September 2018

ERS, September 2017

For any enquiries, please contact us at:

enquiries@regresearchnetwork.org

Respiratory Effectiveness Group
ESpace North, 181 Wisbech Road, Littleport, Ely, Cambridgeshire, CB6 1RA

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